INTERNATIONAL ALBINISM AWARENESS DAY – 2025

 14^th June 2025

Yesterday, Friday 13^th June 2025 was International Albinism Awareness Day.

Albinism is a rare, non-contagious genetic condition present from birth. It occurs when both parents carry the gene responsible for the condition, even if they do not show any signs of albinism themselves. Albinism affects individuals of all genders and ethnic backgrounds and is found worldwide.

The condition is characterised by a lack of melanin, the pigment that gives colour to the skin, hair, and eyes. This deficiency leads to extreme sensitivity to sunlight and bright light, resulting in visual impairment for nearly all individuals with albinism. It also increases the risk of developing skin cancer. Currently, there is no cure for the absence of melanin that defines albinism.

In North America and Europe, albinism affects approximately 1 in 17,000 to 20,000 people. In contrast, it is significantly more common in sub-Saharan Africa, where in countries like Tanzania, the rate is about 1 in 1,400. In certain communities in Zimbabwe and other Southern African ethnic groups, prevalence can be as high as 1 in 1,000.

ROHR Zimbabwe stands in solidarity with people with albinism under the theme: “Demanding Our Rights: Protect Our Skin, Preserve Our Lives.”

In Zimbabwe and across Africa, individuals with albinism face discrimination, violence, and deadly neglect. We call on the government and communities to uphold their rights, ensure access to healthcare – including sunscreen – and end the harmful myths that threaten their lives.

Human rights are not negotiable.

On this occasion, Phylis Melody Magejo said; - “Individuals living with albinism have the right to equal
opportunities with everyone else. Societies should foster inclusivity and fairness for people with albinism. Remove barriers that hinder them from participating or contributing their skills and talents in communities. We say “NO” to discrimination and stigma.”

Indeed, it is very common for people with albinism to be excluded from many things in life. They face insurmountable barriers imposed by society and governments that hinder them from reaching their full potential. 

Some even die prematurely for want of such basics as sunscreen and lotions that would otherwise help prevent diseases like skin cancer. 

Petronella Mahachi said: - “Happy International Albinism Awareness Day. I amplify the voices of people with albinism and encourage all Teachers in Zimbabwe to be mindful of the needs of children with albinism and allow them to sit at the front of the class due to challenges they may face with eyesight.
#UnitedInMakingOurVoiceHeard.

Summary by:-

Information & Publicity Team
Restoration of Human Rights (ROHR) Zimbabwe
Email: humanrights@rohr-zimbabwe.org